I’ve always been a very hopeful person so I never expected to hear what I heard that day,” said Heather. He told them he had some “very devastating” news to report which immediately sent both parents into tears. When they arrived at the pediatrician’s office to find him waiting there with a nurse, Heather said her heart sank ever lower. Initially, the Kaisers thought Viola might have autism or cancer. There were a lot of feelings going through my mind trying to figure out what it could be,” said Heather. “At that point, I realized something was really wrong. While Heather mentioned these concerns to her family doctor during Viola’s regular checkups, she said she did not seem overly concerned, attributing Viola’s tiredness to her lack of sleep. Unlike Roderick, she had a hard time lifting up her head, had trouble sleeping, and always appeared to be tired. Within four months, Heather began to notice certain abnormalities in Viola. She is also the mother of three teenage boys from a former marriage. 14, 2022, Heather gave birth to fraternal twins, Viola and Roderick. It affects one in one million individuals. There is no known cure. It is caused by a deficiency of the enzyme beta-hexosaminidase, which results in the harmful accumulation of certain fats (lipids) in the brain and other organs of the body. Sandhoff disease is a rare, inherited lipid storage disorder which progressively destroys nerve cells in the brain and spinal cord. You don’t really have time to think about the financial side of things when you’re just trying to get through the daily struggles of the heartache,” said Heather. Family, friends, and even strangers have been coming together to help make this possible. “The outpouring of love from all of these people has really touched our hearts. This advertisement has not loaded yet, but your article continues below.
0 Comments
Leave a Reply. |